Chive Charities
Thank You Chive Charities! I am excited to share with you that the great charity, Chive Charities, has purchased me an Action Trackchair to be able to function outside more easily and spend more time with my family. One of the groups they support are those with rare...
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ME/CFS
I am going to start by asking you to take the hour and half needed and watch the documentary Unrest. This movie visually explains the life I am currently living and it is important that we create as much awareness as possible to get the answers we desperately need. ...
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Credit Security Freeze
Due to the recent breach at Equifax, I thought I would share information with everyone on how to put a security freeze on your credit reports. A credit freeze basically stops anyone from checking your credit. If you were to decide you wanted to get a loan, mortgage,...
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Part-time Wheelchair Use
I felt it was very important to address part-time wheelchair use to help raise awareness for this need in our society. My primary diagnosis at this point is Mollaret’s Meningitis (recurrent viral meningitis). I believe my multiple brain injuries as a child made me...
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2017 FND Awareness Day
Today is FND awareness day. I was diagnosed with FND, and I believe it was caused by my rare disease Mollaret's Meningitis. It has been a huge struggle trying to access apprpriate care for this condition for several reasons. There is not...
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2017 Brain Injury Awareness Month
In honor of brain injury awareness month, I thought I would write this blog about my brain injuries and how they affect me and my family. I recently discovered that what I thought was my first brain injury, was actually my second. My Dad recently found pictures of me...
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Rare Disease Day 2017
My rare disease is called Mollaret's Meningitis and is the disease I am raising awareness for on this rare disease day 2017. Mollaret's Meningitis is a rare, and poorly understood, disease that is believed to be caused by the herpes viruses. It is believed to attack...
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Life with Chronic Illness
Life with Chronic Illness I have been quite busy lately founding the Mollaret's Meningitis Association (www.mollarets.org). Our mission is to support those affected by Mollaret's Meningitis and help fund research to find a cure. Our vision is a world free from...
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How Idaho Law Is Affecting My Life
How Idaho Law Is Affecting My Life I am writing this blog post to help the Idaho elected officials know how Idaho law is affecting my life and the lives of Idahoans. I have tried to do everything you are supposed to do in life. Worked in law enforcement, security,...
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Giving Tuesday 2016
Giving Tuesday 2016 Below are some of the organizations that have helped me along my health journey. Please consider supporting some or all of them. Thanks! Rare Disease (Mollaret's Meningitis) Global Genes Is helping our Mollaret's Meningitis Support Group organize...
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Living With Chronic Illness
Living with chronic illness if very difficult. I haven't had the energy to do much of anything lately and my fatigue is getting worse along with most of my symptoms. I thought it was time to write about what it's like to live with chronic illness. Major Health...
read moreGlobal Genes and Mollaret’s Research
Doing research online trying to find some doctors that might be interested in helping our Mollaret's Meningitis support group get more research into our illness, I found Global Genes, www.globalgenes.org. Through their recommendations I was able to get in contact with...
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